In the Parkinson’s community, “swagger” isn’t just about style – it’s about living life on your own terms, embracing the challenges, and finding joy in the everyday. Garry Swanson embodies that spirit. As a loving care partner to his wife Fiona, who lives with young onset (also known as early onset) Parkinson’s, Garry has spent the past decade showing that love, laughter, and innovation can overcome anything. 

A love story built on acceptance and adventure 

Fiona first met Garry about a year after her Parkinson’s diagnosis. From their very first date, Garry’s was there with her, navigating this journey together. Ten years later, their life is still filled with smiles, laughter, and adventure. 

“Garry makes me feel like there is nothing wrong with me,” Fiona shares. “He loves and accepts me for who I am and embraces the Parkinson’s right alongside me.” 

Their adventures together have been as grand as travelling across the world and as intimate as the daily routines they share. In 2022, they fulfilled one of Fiona’s dreams: attending Wimbledon. The trip to London included the legendary tennis tournament, as well as highlights such as seeing the Phantom of the Opera. They’ve also explored Disneyland, Mexico, Prince Edward Island, and even taken an unforgettable Alaskan cruise. 

Innovation and love 

Garry’s care extends beyond emotional support – it’s practical, creative, and forward-thinking. Noticing a gap in tools to help manage Fiona’s health, Garry developed an app for Fiona called My CareCycle. It helps track medications, on/off times, moods, and exercise. The app even generates reports for healthcare providers, turning daily logs into valuable insights. 

It’s a project they worked on together, reflecting not just Garry’s dedication, but the way they approach Parkinson’s as a team. The app is now available on the App Store for others who may find it useful. 

Weathering the off times 

Fiona has undergone Deep Brain Stimulation (DBS), which has reduced her need for medication, but “off times”, those moments when symptoms are more difficult to manage, are still a part of life. 

“You’ve got to ride through them and get on with things as best you can,” she says. “You can’t just crawl back into bed.” With Garry by her side, those moments feel a little lighter. 

Words of wisdom 

Fiona offers heartfelt advice for others: “Don’t be afraid to talk and ask how someone’s doing. Don’t assume they’re okay. Listen, ask questions, and communicate. Share with your loved ones what it’s like to live with Parkinson’s.” 

Garry’s swagger isn’t loud or flashy – it’s steady, grounded, and human. It’s in the way he holds Fiona’s hand, the way he learns new skills to help her thrive, and the way he embraces Parkinson’s as just a part of their lives, not a defining trait.